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NETRF
США
Добавлен 20 окт 2015
The mission of the Neuroendocrine Tumor Research Foundation (NETRF) is to fund research to discover cures and more effective treatments for neuroendocrine cancers. NETRF is committed to improving the lives of patients, families, and caregivers affected by neuroendocrine cancer by providing information and educational resources.
NETRF NET Thrivership Series: Connecting Happiness, Purpose, Enjoyment & Satisfaction: August 2024
In this month's NETRF NET Thrivership Series, we will discuss the connection of happiness, purpose, enjoyment and satisfaction. We will explore how these things relate to a cancer journey.
Просмотров: 48
Видео
NETRF "Know Your NETS" 2024 Virtual Education Conference
Просмотров 36514 дней назад
Know Your NETs Virtual Conference from July 20, 2024 * Play the complete conference, or choose from the Presenters and Panelists listed below. 0:00 Welcome and Intro 3:04 Discovery NETs Basic & Transitional Research 3:16 Dr Anna Greene 11:52 Dr Dawn Quelle 23:12 Clinical Trials/Immunotherapy in NETs Dr Daniel Halperin 38:56 Advances in NETs / European Perspective Dr Jules Derks 56:02 NET & NEC ...
Welcome & Discovery in NETs w/ Basic & Transitional Research NETRF's 2024 Know Your NETs Conference
Просмотров 3414 дней назад
(Part-1) Re-Broadcast of Know Your NETs Virtual Conference • July 20, 2024 Welcome & Conference Introductions by MNETRF's CEO, Elyse Gellerman, MHS and "Discovery in NETs with Basic & Transitional Research" by Dr Anna Greene & Dr Dawn Quelle
"Clinical Trials/Immunotherapy in NETs" from NETRF's 2024 Know Your NETs Virtual Conference.
Просмотров 3614 дней назад
(Part-2) Re-Broadcast of Know Your NETs Virtual Conference • July 20, 2024 "Clinical Trials/Immunotherapy in NETs" with Dr Daniel Halperin
"Advances in NETs from a European Perspective" from NETRF's 2024 Know Your NETs Virtual Conference.
Просмотров 3614 дней назад
(Part-3) Re-Broadcast of Know Your NETs Virtual Conference • July 20, 2024 "Advances in NETs / European Perspective" with Dr Jules Derks
"Combining & Sequencing Novel Therapies" from NETRF's 2024 Know Your NETs Virtual Conference
Просмотров 6414 дней назад
(Part-4) Re-Broadcast of Know Your NETs Virtual Conference • July 20, 2024 "Combining & Sequencing Novel Therapies" with Dr Xavier Keutgen, Dr Chih-Yi Liao & Dr Osman Ahmed
"Tumor Board" from NETRF's 2024 Know Your NETs Virtual Conference
Просмотров 6114 дней назад
(Part-5) Re-Broadcast of Know Your NETs Virtual Conference • July 20, 2024 "Tumor Board" with Dr's Keutgen, Liao, Lewis, Ahmed, Chauhan and Soares
"Symptom Management and Nutrition" from NETRF's 2024 Know Your NETs Virtual Conference
Просмотров 7514 дней назад
(Part-6) Re-Broadcast of Know Your NETs Virtual Conference • July 20, 2024 "Symptom Management and Nutrition" with Dr Heloisa Soares & MS Luz Chavez
"Genetics and Fertility" from NETRF's 2024 Know Your NETs Virtual Conference
Просмотров 1514 дней назад
(Part-7) Re-Broadcast of Know Your NETs Virtual Conference • July 20, 2024 "Genetics and Fertility" with Dr Mark Lewis & Dr Feighanne Hathaway
"Thrivership and Quality of Life" from NETRF's 2024 Know Your NETs Virtual Conference
Просмотров 2614 дней назад
(Part-8) Re-Broadcast of Know Your NETs Virtual Conference • July 20, 2024 "Thrivership and Quality of Life" with Jessica Thomas & Simron Singh
"Hope in the Future of NETs" from NETRF's 2024 Know Your NETs Virtual Conference
Просмотров 3414 дней назад
(Part-9) Re-Broadcast of Know Your NETs Virtual Conference • July 20, 2024 "Hope in the Future of NETs" with Dr's Chauhan, Liao, Greene, Halperin, Quelle, Soares, Derks, Ahmed, Keutgen, Singh, Lewis and MS's Chaves, Hathaway and Jessica Thomas
"Q&A Session and Conference & Closing Remarks" from NETRF's 2024 Know Your NETs Virtual Conference
Просмотров 3814 дней назад
(Part-10) Re-Broadcast of Know Your NETs Virtual Conference • July 20, 2024 "Questions & Answers Session and Conference End/Closing Remarks" with Dr's Kuetgen, Liao, Greene, Chauhan, Soares and Elyse Gellerman
"NETs & NECs 101" NETRF's 2024 Know Your NETS Virtual Pre Conference Video by Dr Aman Chauhan.
Просмотров 28721 день назад
"NETs & NECs 101" NETRF's 2024 Know Your NETS Virtual Pre Conference Video by Dr Aman Chauhan
NETRF NET Thrivership Series: Hearing from others with NETs, NECs and Caregivers
Просмотров 18821 день назад
In this month's NET Thrivership Series, we hear from others impacted by NETs and NECs. This includes a caregiver perspective. Watch as they share how they thrive, what information they would share with someone who is newly diagnosed, and something that they have learned from their healthcare team.
NETWise Episode 37: Uncommon Nueroendocrine Neoplasm (NEN) Sites
Просмотров 17721 день назад
Neuroendocrine neoplasms can arise in many locations throughout the body; they can grow rapidly; and they can occur under unique circumstances. In this episode of NETWise, we talk through some of the more uncommon locations - and situations - where neuroendocrine neoplasms arise. This episode is devoted to some of those more uncommon situations. To download a transcript of this episode: netrf.o...
NETWise Episode 1 Refresh: What You Need to Know About NETs & NECs.
Просмотров 261Месяц назад
NETWise Episode 1 Refresh: What You Need to Know About NETs & NECs.
NETRF NET Thrivership Series: Coping with "Scanxiety"
Просмотров 1512 месяца назад
NETRF NET Thrivership Series: Coping with "Scanxiety"
NUCLEAR MEDICINE AND PRRT- WHAT IS NEW by Heather Jacene, MD, Dana-Farber Cancer Institute
Просмотров 2952 месяца назад
NUCLEAR MEDICINE AND PRRT- WHAT IS NEW by Heather Jacene, MD, Dana-Farber Cancer Institute
SYMPTOM MANAGEMENT by Kim Perez, MD, Dana-Farber Cancer Institute
Просмотров 2962 месяца назад
SYMPTOM MANAGEMENT by Kim Perez, MD, Dana-Farber Cancer Institute
NET IMPACT- WHAT DO WE KNOW NOW? by Thor Halfdanarson, MD, Mayo Clinic
Просмотров 5692 месяца назад
NET IMPACT- WHAT DO WE KNOW NOW? by Thor Halfdanarson, MD, Mayo Clinic
SURGERY & INTERVENTIONAL RADIATION TREATMENTS by Thomas Clancy, MD, Dana-Farber Cancer Institute
Просмотров 1712 месяца назад
SURGERY & INTERVENTIONAL RADIATION TREATMENTS by Thomas Clancy, MD, Dana-Farber Cancer Institute
NET CLINICAL TRIALS by Hussein Assi, MD, Boston University School of Medicine
Просмотров 982 месяца назад
NET CLINICAL TRIALS by Hussein Assi, MD, Boston University School of Medicine
BASIC AND TRANSLATIONAL RESEARCH by Chris Heaphy, PHD, Boston University School of Medicine
Просмотров 822 месяца назад
BASIC AND TRANSLATIONAL RESEARCH by Chris Heaphy, PHD, Boston University School of Medicine
RESILIENCE IN MOTION: FOSTERING EMOTIONAL WELLNESS by Jessica S. Thomas, LCSW
Просмотров 572 месяца назад
RESILIENCE IN MOTION: FOSTERING EMOTIONAL WELLNESS by Jessica S. Thomas, LCSW
NETRF NET Thrivership Series: Mental Health Awareness and NETs: May 2024
Просмотров 1093 месяца назад
NETRF NET Thrivership Series: Mental Health Awareness and NETs: May 2024
NETWise Episode 34: Young Adults Living with NETs: Episode Update
Просмотров 1454 месяца назад
NETWise Episode 34: Young Adults Living with NETs: Episode Update
NETRF NET Thrivership Series: Making Changes: April 2024
Просмотров 1444 месяца назад
NETRF NET Thrivership Series: Making Changes: April 2024
I was just diagnosed 3 days ago with a NET to my Ileum. Waiting now to be seen by a physician to discuss my treatment options. This was a very informative video. Thank you
Thank you! I may be facing this diagnosis and will see a dermatologist.
Stephanie has been an inspiration to me throughout my NET journey. Thank you, everyone, for all you do for patient education, research, and support!
Do you have any info on TIL therapy?
Hola, tengo 63 años con CANCER DE PANCREAS, en la porción inferior de la cabeza y proceso uncinado del páncreas, persiste lesión hiperdensa, con medidas aproximadas de 4. 5 x 4 x 3. 5 cm (CC x AP x T) que genera obstrucción y dilatación del ducto pancreático. Dicha masa rodea la arteria y la vena mesentérica superior. Hay estriación de la grasa en la raíz del mesenterio. Se observa estabilidad del tamaño tumoral al comparar con resonancia de febrero de 2024.CA 19-9=873ng/ml, ESTADIO IV. Llevo 7 de 12 de Quimioterapias con FOLFIRINOX. Metástasis en vértebra T1 por PET , RNM y TAC. Lesión blástica, sin dolor ni déficit neurológico. (me van a realizar Radioterapia) (CIBERKNIFE MONOFRACCION). Paciente de clínica Oncológica Astorga en Medellín Colombia y de Baptist Florida. Quisiera saber si hay otro tratamiento complemento o mejor para mi caso o a dónde me recomiendan comunicarme. No tengo seguro Internacional, Tengo Nacional Poliza Sura. Por favor su ayuda, muchas gracias. JOSE QUINTERO +573023885295 josefqa2@gmail.com Gracias
هل يمكن ان بساعدنى احد زوجتى تعانى من نفس المرض ولا يوجد طبيب متخصص فى NET فى بلدى لا اعرف ماهو الحل
Great tips and advice for relaxing during stressful procedures. Thanks for putting this together!
Yes, Burt, I agree with you!
❤❤❤❤❤
What would the downside have been to start lutathera right at the outset, or at least after the liver resection?
مرحبا NET فى بلادى لايوجد تخصص NET هل يمكن ان تساعدنى للسفر لاجراء فحوصات وعلاج لذلك الورم تحياتى اليك
Thanks. This was very helpful!
Fantastic!!
I have the opposite problem. Constipation! Had 3 tiny neuroendocrine tumors removed in 2022 plus my gallbladder. I always had a tendency to constipation before surgery. Maybe that's a good sign? 😉
❤ so very helpful thank you
Can you help me my wife have NET
❤ thanks so much
هل يمكن أن يساعدني احد زوجتى مصابة بهذا المرض
Nancy your quick message was powerful. This was exactly my same experience.
too many commercials for a video which is essentially an infomercial
youtube.com/@user-bc1lc8fm3w?si=yonejoad8JVWA2Lj
Thanks for posting
These first 4 episodes have been incredibly informative and helpful … NET was a diagnosis in the family … we are just learning about it, and understanding the diagnosis, terminology, processes and procedures is invaluable to all family members involved, in my opinion.
Traducere an Romana..
I have the cells now plus an autoimmune disease what next I guess it’s stable now ?
Great presentation, thank you!
1:29 review
Typical, atypical to genomic classification
I did well for over 2 years with having my prrt in Nashville at Vanderbilt. Now growth in liver has appeared. Available round 2 has been brought up.
Thank you for this info. Last year they found via a CT-scan a NET tumor in my left lung. I was already for a long time very, very tired/fatigue, had lost a lot of weight, had hot flushes and at night I could wake-up complete wet of sweating. When they had found the tumor the doctor told me that these symptoms had to do with the NET cancer. The tumor is removed, my under part of my left lung is removed and 3 lymph nodes. Lucky the cancer was not spread. I need to be checked via CT-scan every year for 10 years.
Can we conclude that the major breakthrough in the treatment apart from surgery in the localized disease are somatostatin analog and PRRT.
Great presentation of a very confusing topic.
Though neuro-endocrine cells are are present in many organs chiefly the aero digestive passages the lungs are the most common seat of NETS, no one knows why?
There are several ways to treat metastatic NET such as medicines, IR, PRRT, and surgery. The most important thing is the sequencing of these modalities.
Good to share. I have NETS.
Good grief!!! Turn the obnoxious music down or better yet, off !!
Thank you, Congressman Castro, for sharing your NET story. I'm sure you will help many people through your position in government. May you be healthy.
Are there any stats on NEC located in the tongue?
My husband was just diagnosed with NEC in his tongue which is also in his lymph nodes in his throat. Very rare location that I cannot find any info on! PET scan appointments are two weeks out and I am so frustrated.
How many sitting of PRRT treatment
Very good presentation. I wish this was available to watch 22 months ago.
Very informative
I have been extensively involved in trials for 2 years with NIH and NCI. I approached them on my own. I am a poor man. I say this because I want others to know you can do it too regardless of your race.
My Cardio doctor for 20 years.
Thankyou. I,m at the beginning of my journey awaiting surgery for likely neuroendocrine 24:24 pancreatic tail tumour.
Can you help me
Promo_SM 💞
매우 매우 감사합니다❤
My carcinoid cancer was in the Aisle of Vater.Affecting my small bowel snd pancreas and now blood sugar I chose not to have Whipple surgery but take Lanroetide for the last 3 years. It took 7 months and MANY MRIs and scans and blood work ti find the tumors The tumors are Very rare and was very difficult to find . My ONCOLOGIST is with the START CENTER IN SAN ANTONIO TX MY Gastro doctor is the one who finally found the tumors I am doing ok with 2 insulins trying to control my blood sugar Pancreas is functioning at 50 % I enjoy your posts
All the contrast involved caused kidney function to decreasw
I had major open surgery.& . Tumor was going to liver . Lives function went to 1900. ICU 4 days . Hospital total 7 days . Long recovery
Liver
This doctor is not serious. He's always joking. NET s are incurable as of now. R&D , clinical trials are on.
I am a NET's patient. I have stage 4 as its in my lung, my mediastinal lymph node metastized to my liver my small intestine and my pancreatic area not the pancreas itself. I dont suffer from any GI issues , I suffer from the exhaustion and loss of breath due to the somatostatin being right on my heart. Thank you posting Its very hard to get information thats not 5 or 6 years old but i need to see it .....64 and still here....
how are you doing now??
@@300jus my symptoms are mostly exhaustion. So I do try to walk I just have to stop to breath as I get out of breath .. but it is what it is .. I know it won’t get better but like a chronic condition I’m just learning to live with it . Today marks my 12th months ago of being diagnosed….
Best Dr. ever. I love the man and his teeam, keeping me alive.